Who developed this website?

Australian Cancer Trials was developed in 2008, as a joint collaboration between Cancer Australia, the lead national cancer control agency, researchers, cancer specialists and cancer consumers.

Organisations involved include: 

Cancer Australia is an Australian Government agency, working to reduce the impact of cancer on all Australians through national cancer control, prevention treatment and care that is consumer-focused and evidenced-based.

Cancer Australia is committed to making this consumer-friendly website about cancer clinical trials available to the Australian community in order to increase consumer knowledge and participation in cancer clinical trials. Its National Consumer Advisory Group has had input into the development of this site. Cancer Australia has valued the partnership with the University of Sydney, the NHMRC, the Australian New Zealand Clinical Trials Registry and Cancer Voices NSW in making this a reality.

'Our consumer organisations wanted to find a way:

  • to help increase the rate of participation in cancer clinical trials for the general good
  • to make the value of clinical trials more easily understood
  • to assist individuals, like ourselves, to find the trials which are suitable to our needs.

We were delighted when our 'voice' was heard. We were also very pleased to be invited to join the expert team putting our concept into reality. This is best practice consumer involvement - in action!

Since the late 1990s we had been advocating, firstly a register of cancer clinical trials, and then a consumer-friendly website for easy access to such a register. The first aim was achieved by the establishment of the Australian New Zealand Clinical Trials Registry, and the second is met by this new website. As the Principal Researcher charged with bringing the consumer perspective to the University of Sydney's Australian Clinical Trials Project, a major part of my role was to co-ordinate and contribute consumer views which would inform the relevance and ease of use of the website. We believe that Australian Cancer Trials will make it much easier for people affected by cancer to take informed decisions about entering clinical trials.'

Sally Crossing AM
Chair, Cancer Voices NSW

The University of Sydney was awarded a National Health and Medical research Council (NHMRC) research grant in October 2007 to develop and evaluate a consumer friendly website about cancer clinical trials. This is the first time internationally that a clinical trials website has been prospectively evaluated. The evaluation is the first important step in the implementation of Australian Cancer Trials. The results will allow us to optimally meet the needs of people affected by cancer and use evidence based methods to assist them, with their cancer specialist, make decisions about their treatment options, including clinical trials.

The Australian New Zealand Clinical Trials Registry (ANZCTR) was established in 2005 with the aim of collecting key information about all clinical trials (not just cancer) being conducted in Australia and New Zealand and making this available on its website. It is a resource that can be used by a wide variety of stakeholders for a range of purposes.

The primary function of the ANZCTR is to register trials. Over 450 cancer clinical trials are registered on the ANZCTR. This is an enormous database of useful information about cancer trials. This database, in addition to ClinicalTrials.gov, is being used to provide the details about cancer clinical trials on the Australian Cancer Trials website.

The information from ANZCTR and ClinicalTrials.gov is displayed on Australian Cancer Trials to provide consumers and doctors with fast, user-friendly access to information about cancer trials currently registered on the ANZCTR and ClinicalTrials.gov.